Day 51
Emma has been having some rough days unfortunately. She has been getting a little bit worse lately. The rate on her SiPAP had to be increased and she is requiring much higher oxygen levels. She is de-satting frequently and severely, with also some apneic episodes when her respiratory rate drops low. Her glucose levels are also very high again. Her lungs sound clear and another chest X-ray was done and looked clear, but she was given a dose of Lasix to flush fluids out to see if that helps. They are meeting today and deciding whether to intubate her again.
She gained weight last night and is up to 1020 grams (finally hit the kilo mark!) but the Lasix often causes her to lose a little weight, so she may drop down some tonight.
It feels almost like we are back to where we started from. It is very frustrating and discouraging and sometimes I wonder if Emma will end up walking out of the NICU at this rate. We are told that this is all very standard as far as Emma's progression and ups and downs, but it is difficult to see the light at the end of the tunnel when we keep moving backwards. Hopefully better days are to come.
Emma is a fighter like her mother. She will get bigger and stronger. My thoughts are with you and Matt all of the time. Love you guys. Geralyn
ReplyDeleteShe's come so far since October. You and Matt incredibly strong, and made a strong, beautiful little girl who can make it through anything. Even though she's taking a little break right now, she'll be back on the cannula train in no time. Each time she struggles a bit, she then succeeds even farther than expected and she'll keep doing it! I love you all very much.
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