Well, unfortunately we have more bad news to report. Emma had to be reintubated late last night. She had seemed to be improving later in the day, but we received a call at midnight last night that she needed to go back on the ventilator. She was just getting more tired and had frequent de-sats and bradys. She has been doing okay on it, but it hasn't really turned things around for her. Her blood gas results are getting a little better but still not great, and her oxygen level is still somewhat high. Hopefully she just needs some time to rest and adjust and get back on track.
We have spoken with doctors and nurses about this and they all stress the message that this is not uncommon and she is still doing well in the big picture. We are trying to stay positive and strong because we know Emma is a fighter. She has continued to be active and alert and is not showing any signs of infection or anything other than just needing more support.
Her feeds were increased yesterday to 6.5 mL/hour and she gained another 10 grams and is now 1030 (still 2 lbs., 4 oz.). She even graduated to the next size up in diapers! She's still got some room to grow in them.
I know some of the pictures are dark but we try to keep the lights dim in the room and we don't use the flash. Gotta protect her little peepers!
Last pictures of her with the SiPAP for awhile =(
She wiggles herself to the end of her little bed and then hangs out like this:
I hope she gets some good rest and is back to kicking butt very soon! Those little arms are looking more and more plump. Lots of love and prayers for you all!
ReplyDeleteCome on, little Emma. You are a tour de force and an inspiration to us all! We know you'll be back up there as strong as ever very soon. Keep up the fight, sweetheart! We love you oh-so-much!!!oxoxox
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